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Inherited Retinal Disease Patient Day 2026

An expression of interest is now open for an upcoming Inherited Retinal Disease Patient Day, hosted by the Lions Eye Institute in collaboration with the Children’s Medical Research Institute.

This free, full-day event will be held in November 2026 and is designed for patients, families and carers affected by inherited retinal diseases, including conditions such as:

  • Retinitis pigmentosa
  • Usher syndrome
  • Stargardt disease
  • Leber congenital amaurosis
  • Macular dystrophy
  • Rod dystrophy or rod-cone dystrophies
  • Achromatopsia
  • Cone dystrophies or cone-rod dystrophies.

Associate Professor Fred Chen and Dr Livia Carvalho

Associate Professor Fred Chen and Dr Livia Carvalho

Dr Alicia Brunet and Dr Livia Carvalho in the laboratory

Dr Alicia Brunet and Dr Livia Carvalho

Attendees will have the opportunity to hear from leading clinicians and researchers about the latest developments in inherited retinal disease research, as well as connect with support services and others with shared experiences. Through a series of expert presentations and interactive sessions, the day aims to build knowledge, reduce isolation, and support wellbeing within the community.

 

This event is open to anyone interested and is not limited to patients of the Lions Eye Institute. Food and refreshments will be provided throughout the day.

Submit your expression of interest here or email Dr Alicia Brunet, postdoctoral researcher, at alicia.brunet@lei.org.au

Further details to be confirmed.

 

 

 

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