Date: 18 August 2026, 6:00 pm – 8:00 pm
Location: eZone at UWA – Nedlands, WA
Do you live with Visual Snow Syndrome (VSS)?
Researchers from The University of Western Australia (UWA) and the Lions Eye Institute are inviting people with lived experience of Visual Snow Syndrome to take part in a Micro Community Conversation.
What is Visual Snow Syndrome?
Visual Snow Syndrome is a neurological condition that causes ongoing visual disturbances, often described as seeing static, flickering dots, or “snow” across the visual field. Many people with VSS also experience other visual symptoms that can affect daily life.
A representation of how Visual Snow Syndrome can impact vision, with “Visual snow” (on left half) contrasted against “Typical vision” (on right half)
What do researchers want to learn about Visual Snow Syndrome?
Researchers want to better understand:
- Which visual symptoms affect people the most
- Everyday visual tasks that are difficult because of VSS
- What people with VSS would like researchers to focus on
- How future vision research can better support people living with the condition
Your feedback will help inform a research program investigating how the brain processes visual information in people with VSS.
Who should attend?
Register your Expression of Interest (EOI) if you:
- Have been diagnosed with Visual Snow Syndrome (VSS)
- Are 18 years or older
- Reside in Greater Perth (in-person event)
What are the event details?
- Format: In-person
- Location: eZone at UWA – Nedlands, WA
- Date: Tuesday 18 August 2026
- Time: 6pm to 8pm
Places are limited to up to 6 participants to allow for an open and meaningful conversation.
How do I register my interest?
If you would like to submit an Expression of Interest, please complete and submit the form on this page.
An $80 honorarium (gift card) is offered to attendees, and light refreshments will be provided.
If you are unable to attend but would like to be involved with future research in this area, please complete the application form and make a note that you are unable to attend but would like to be involved.
Flyer for Visual Snow Syndrome Micro Community Conversation
